I was diagnosed with coeliac disease in 2012 and to be honest it was a massive shock to the system. My best mate Kay had it and kept telling me to get tested, but I just didn’t believe it would be coeliac as so many doctors had told me it wasn’t and I had totally different symptoms from Kay.
I had symptoms for 22 years before I found out. Crazy huh?! Kay had symptoms for about 4 weeks before she landed a brilliant doctor who investigated her symptoms properly and immediately.
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Anyway, luckily, I have a brilliant dietitian as a friend and he talked me into going back to the docs to ask about getting a tTG test (IgA Tissue transglutaminase antibody test) – this is a blood test that shows that coeliacs have antibodies in their system that are wrongly produced when they eat gluten. I did and the results showed that my results were ‘highly suggestive for coeliac disease.’
For adults, after you have had a blood test, you usually also get an endoscopy (camera down into your stomach and intestines) and they take a biopsy to see how damaged the lining of the intestines is. When I had it done, it confirmed that I was indeed a coeliac.
That’s probably enough about my diagnosis, but I thought it would be helpful if any of you are thinking you may have symptoms. Please see this page if you want to know more about the symptoms.
Coeliac Awareness Week this year is all about trying to find those who are undiagnosed, those people who unknowingly have coeliac disease. A whopping 1 in 4 people with coeliac were previously diagnosed with IBS. So, if you have any concerns at all – it is well worth getting tested. Honestly, you can make such a huge difference to your life.